Maisie O'Brien, 29, of Wisbech, Cambridgeshire (bottom right), was diagnosed with epilepsy and an ultra-rare genetic condition called Shox depletion at just nine months old (top right). She endures up to 40 seizures a day, leaving her parents Nicky (left) and Neil, 29 and 43, petrified she will have a fit and stop breathing while they are asleep. her parents are currently raising money for a special mattress which will sound an alarm should she begin to convulse. They are also hoping to buy a sleep apnoea machine, which monitors her breathing, and will also sound an alarm if she doesn't take a breath for 10 seconds. Mrs O'Brien said: 'Night times are the most worrying for us, as she could stop breathing or vomit and choke on it. Her seizures could be fatal, which is the worst fear for any parent of an epileptic baby.'
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