Stanley Newman, from Clacton, Essex, has the ultra-rare muscle wasting disease congenital muscular dystrophy (right).
Over time, it will weaken all the muscles in his body and there is a serious risk it could cause heart failure. Stanley has become part of a pioneering trial which involved fitting a Bluetooth device in his chest which monitors heart activity (left).
The device has been described as his 'hi-tech guardian angel' as it will keep him in touch with doctors, 24-hours-a-day for three years.
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